Adaptação transcultural do The Congenital Heart Disease Quality Of Life Questionnaire (ConQol): versão Brasil

Abstract

Congenital Heart Diseases (CHD) affect 1.35 million newborns in the world each year, being the most common among congenital malformations. With advances in health treatment technology, there has been an important increase in the survival of children with CHD and about 90% of them reach adulthood. Of the affected patients, 25% are submitted to corrective or palliative surgeries, which can present satisfactory results, while others, can develop important residual injuries, which will still require lifelong care. Thus, it is difficult to predict how these interventions will affect the lives of these patients in the long term, as some of these surgeries and treatments can lead to developmental deficits. In recent years, there has been an important growth in the relevance of Health-Related Quality of Life (HRQoL), since the individual's well-being was recognized as a determining point for the prevention, intervention and rehabilitation of health. The aim of this study was to cross-culturally adapt the instrument The Congenital Heart Disease Quality of Life Questionnaire (ConQoL), for the Brazilian population. This is a methodological study for Transcultural Adaptation of The Congenital Heart Disease Quality of Life Questionnaire (ConQol), which is an instrument that measures the health-related quality of life of children and teenagers with congenital heart disease aged eight to 16 years. The following steps were used for the translation and cross-cultural adaptation process: 1) Translation of Conqol into Brazilian Portuguese, 2) Evaluation by the Committee of Judges, 3) Back-translation into British English and comparison with the original version and 4) Semantic Analysis. The cross-cultural adaptation process lasted nine months, three children diagnosed with congenital heart disease participated in the semantic analysis stage, patients at the Cardiology Outpatient Clinic of the Clinical Hospital of the Federal University of Uberlândia, all participants were male between the ages of 10 and 11 years. Through the responses of the Numerical Verbal Scale, an analysis was made of the respondents' degree of understanding regarding the adapted version of the instrument, of the three participants, two reported having understood all items perfectly and having no doubts. With the execution of this study, the cross-cultural adaptation of the ConQol instrument was obtained, for the Brazilian language and culture, and when validated, it can be used for national health research. It should be noted that in the face of the COVID-19 pandemic (Sars-CoV-2), this study had limitations in the stages of semantic analysis and pre-test, so that the research is not compromised, a pilot will be carried out prior to the instrument validation process.