O significado da maternidade para mães de crianças e adolescentes hemofílicos

Abstract

The purpose of this study was to describe and analyze the meaning of motherhood in the life course of children/teenagers mothers with hemophilia. This is a qualitative study that falls into the category of Oral History type that tried to answer the question: what is the meaning of motherhood for mothers of children and adolescents with hemophilia? Studies about motherhood and mother-child relationship in chronic disease were used as theoretical approach. The seven participants were located by means of registration in the Uberaba Regional Blood Center (HRU), located in the city of Uberaba/MG. Data collection was conducted following an interview guide and information recorded in the field diary. For data analysis we used the technique of thematic content analysis of Bardin adapted by Gomes. The result of the analyzed statements was presented in two categories: the first one, The daily life of living with a child with hemophilia", discusses the experiences of the mothers of children and adolescents since the discovery of the diagnosis until the present time and the role of the health professionals toward the news of the diagnosis and the complications; the second one, "Conceptions of motherhood", broaches the period of gestation, running through the birth of a child with hemophilia, until the present interaction between mothers and their children. We concluded that the meaning of being a mother of hemophiliac children or adolescents is a construct that is given in stages and is permeated by difficulties, barriers, fears and worries that become more amenable as the mother-child faces every barrier and, thus, learns to accept and deal with the disease.